The videos on this page are in no particular order. If you are aware of any other informative videos, please let me know and I’ll add them.
Myotonia Congenita Simplified (Anna Heidinger)
A video made for a school project that covers the basics of what myotonia congenita is.
A doctor explains the basics of myotonia congenita.
Myotonia congenita – Know It ALL (See Hear Say Learn)
This is a video that looks like it was auto-generated using a text-to-speech processor. It’s slightly annoying to listen to the robot voice for so long, but it does have useful information.
Demonstration of Symptoms
Myotonia congenita Thomsen (DarkMorgain)
A demonstration of the warm-up effect – where stiffness is reduced as an action is performed repeatedly in a short period of time.
Myotonia Congenita (Dr Gauhar Mahmood)
A demonstration of the stiffness associated with tightening one’s hand and then opening it.
Myotonia congenita. Osama SM Amin MD, FACP (Osama SM Amin)
Demonstrating the stiffness when gripping an object tightly and when standing up.
Myotonie Congenita (Ludger Grawe)
A compilation of clips from different sources. This shows a few animals with myotonia congenita at the start and then shows symptoms in people. Although the voiceover is in german, it’s not too hard to understand what’s happening.
Myotonia Congenita: Walking Up Stairs (April Marie)
Shows the effect of walking up a flight of stairs.
Myotonia Congenita – Its Not Just About Fainting Goats (XtrOrdinaryFilms)
Shows how the muscle stiffness can cause someone to fall over and how it will impact them differently than in fainting goats.
Myotonia congenita (NEUROLOGY MADE INTERESTING)
Shows the delayed muscle relaxation found in myotonia congenita.
Living with Myotonia Congenita
Youtuber BABYNASH has posted a handful of videos where he talks about myotonia congenita:
Gaming with Myotonia Congenita (BABYNASH)
Myotonia Congenita (BABYNASH)
How did my parents find out I have Myotonia Congentia? (BABYNASH)
HOW TO NOT BE EMBARRASSED WITH MYOTONIA CONGENITA (BABYNASH)
Dating with myotonia congenita (BABYNASH)
HOW DID I GET HUGE MUSCLES! (Myotonia Congentia) (BABYNASH)
Martina Ambrovcikova has uploaded several videos discussing life with myotonia congenita:
VLOG 1 // LIVING WITH MYOTONIA CONGENITA 😥 (Martina Ambrovcikova)
VLOG 2 // LIVING WITH MYOTONIA CONGENITA (Martina Ambrovcikova)
MYOTONIA CONGENITA (PART 3) 😱 AND ABOUT YOUTUBE (Martina Ambrovcikova)
Myotonia Congenita // Can you die? // MUST WATCH (Martina Ambrovcikova)
Myotonia Congenita // PART 2 // Cure ??? (Martina Ambrovcikova)
Other people have also documented their experiences.
Session – III: Patient Perspective – Video1 Mr. Aquibur Rahman, Story- ‘Myotonia Congenita’ (Indian Organization for Rare Diseases)
A man describes his experiences at a rare disease conference from 2018.
Myotonia – A Child’s Perspective (XtrOrdinaryFilms)
Discussion of how simple things like climbing a staircase daily at school feels for someone with myotonia congenita.
Living with a Muscle Disease | Myotonia Congenita | My Story (Brenna Burk)
Breanna describes what it’s like living with the disease.
PPA Orlando Conference 2015 :: Christoph Lossin Ph.D.
A lecture from 2015 from Dr. Christoph Lossin at the Periodic Paralysis Conference. Slides can be found here.
Five things to know about Congenital myotonic dystrophy with Craig Campbell, MD | MDC – DMC (Muscular Dystrophy Canada)
A lecture from Western University in London, Ontario.
What Is The Science Behind Fainting Goat (What is Myotonia Congenita) (Hamed Hosseini)
An introduction to the science of how myotonia congenita affects the body.
Myotonia Congenita in Animals
Fainting goats are a breed of goat that have myotonia congenita. When the goats are startled, they fall over and appear to “faint”. For a lot of us with myotonia congenita, it’s difficult to watch animals suffering with the disease, but I’ve included the videos nonetheless because they may be informative.
Myotonic Fainting Goats (shootingpeople)
Best of Fainting Goats (EpicVirals)
Myotonia congenita can also affect other animals.
Myotonia Congenita: Pets (April Marie)
Suspect Myotonia Congenita Dog (k8tannscott)
Spierziekte: niet-dystrofische myotonieën, Becker myotonie, Thomsen myotonie (Spierziekten Nederland)
A video in Dutch discussing the different forms of myotonia congenita.
Was ist Myotonia Congenita (Gesundheit)
A video in German that appears to describe the basics of Myotonia congenita.
THOMPSEN’S DISEASE (MYOTONIA CONGENTIA) (National Archives Video Collection)
A very old and unusual video from the 50’s showing some cases of myotonia congenita.
Myotonia Congenita (Joy Shi)
A lovely story for children about a cat who has myotonia congenita. Talks about some science-y stuff in the process.